RESEARCH AT BWINDI COMMUNITY HOSPITAL
Bwindi Community Hospital has an active research program involving projects lead by local staff, and other Ugandan and international partners. Links to some of this work are given below.
Our key needs for future development of this program is that it builds on what has already been done, innovates where possible, takes account of the data that is available, and identifies ways in which new projects can help further develop the hospital’s data assets for future research.
Our goal is to carryout high quality research in order to produce scientific knowledge in relation to health that enables improvements to the well being of the population.
so far, 21 Research studies have been done. Some of these studies are BCH’s initiative and others by our partners. 4 of the studies have been published by ourselves, 5 reports have been shared with us, 5 not yet shared and 7 studies are still on going.
Current, past and planned future research has focused on the following areas:-
- Community Health
- Community Health Insurance (e-Quality)
- Mental Health and subsistence abuse
- Family planning and other reproductive health
- Chronic Care
- Laboratory ( e.g. microbiology)
- Operational Efficiency
- Maternal New born and Child Health
DATASETS: There are a variety of existing datasets at Bwindi Community Hospital that can potentially help most areas of research. The hospital’s data is a combination of electronic operational databases and paper records, with a significant part of it already in digital form, and the aim of achieving general integrated digitisation. Electronic databases currently support and keep records for the hospital’s main outpatient and inpatient services, its population-based community health insurance and community health outreach work, and its HIV programme. The data in these databases have provided, and can provide, the basis for a wide range of research. For it to do this, a researcher will need to work closely with, local experts, both technical and subject area. Our data assets are the product of substantial past investments in time and resources, from a variety of people. So, in both areas where our systems are more developed, and those where this is less so, we would want researchers to be part of a collaboration that helps us to develop these assets further for the future.
Institutions that we have partnered with and studies done
University of California Davis (PREDICT - Surveillance for emerging zoonotic disease threats and behavioral risk characterization in high-risk communities in Asia and Africa)
Colgate University (Community Health and Poverty Analysis)
University of Texas Southwestern Medical Center ( Quantitative and Qualitative Analysis of Trends, Causes, Risk Factors, and Variables of Mortality Among Children under 5 years old in Bwindi, Uganda from 2008 to 2018)
Florida International University, Herbert Wertheim College of Medicine (Miami, FL, USA); University of Texas Southwestern Medical Center (Dallas, TX, USA); University of Alabama at Birmingham School of Medicine (Birmingham, AL, USA) Identifying Barriers to HIV Management and Treatment in the Catchment Area of Bwindi Community Hospital
If you are interested in carrying out Research at BCH, read the BCH Research Procedure which includes; the research flow chart, research proposal form and data confidentiality form.
Bwindi Community Hospital Research flow chart
Bwindi Community Hospital Research Proposal form
Details of Principal Investigator:
Institution and Department: Answer
Job title/role: Answer
Website if available: Answer
Details of proposed research:
- Study title: Answer
- Study team members: Answer
- Status of study: Funded (please give details) / Proposed study / Masters; PhD; Other studentship. Answer
- Brief summary of study: (Please include objectives, methods, anticipated number of subjects, anticipated study duration, etc. What will individual participants be required to do? If a protocol or written proposal is available please include it.) Answer
- Proposed study dates: (If there is a specific time that you need to do the study, please specify) Answer
- Does the study already have IRB approval? Yes / No / Not required (Please give details – which IRB(s) have you applied to/do you plan to apply to? If you have already applied, please list dates of application and approval. If you feel that ethical approval is not required, please describe rationale for this below.) Answer
- Please summarise proposed arrangements for consent: Answer
- Have you identified any ethical issues that need further consideration? Answer
- Why is this an important/relevant research question? Answer
- Why do you want to do this research at BCH, specifically? (If you already have an affiliation with BCH, please state that here.) Answer
- How will this study benefit the patients of BCH, either directly or indirectly? Answer
- How will this study benefit the Hospital, either directly or indirectly? Answer
- Please describe arrangements to ensure confidentiality, data security and access to data:
BCH staff contributions and health:
- Please describe what contributions will be needed from BCH staff. (How much time is this likely to require? What training will be provided? Are there any risks to BCH staff?) Answer
- What translation needs do you have in preparation for the study (i.e. translation of study materials)? Answer
- What translation needs will you have during the study (i.e. obtaining consent, interviews, focus group discussions)? (Please be as specific as possible – for example if you anticipate needing a translator for 2 hours each day, please state so.) Answer
- What translation needs will you have after the conclusion of the study (i.e. reviewing interview transcripts)? Answer
- Please describe your plan to share the study findings with the Hospital. (This plan must include, at minimum, the submission of a brief written report summarizing the results and conclusions of the study within 6 months of project completion.) Answer
- Research Fee (Please mark the appropriate category. The research fee must be submitted prior to initiation of the study.)
Ugandan Principal Investigator:
- Individual or Team ≤ 5 people and project ≤ 3 months: 50 USD
- Organization or project > 3months: 200 USD
Discount of 50% applies in if there is co-authorship with BCH staff.
Undergraduate students will be not required to pay.
Non-Ugandan Principal Investigator:
- Individual or Team ≤ 5 people and project ≤ 3 months: 200 USD
- Organization or Team > 5 people or project > 3 months: 600 USD
Discount of 50% applies in if there is co-authorship with BCH staff. Undergraduate students will be required to pay 50 USD
- On-site resource needs (Please list BCH resources you propose to utilize. These will be charged at the conclusion of the study. A list of estimated costs and mode of payment will be supplied to you in response to this application.)
- Staff time: Answer
- Clinical supplies: Answer
- Office supplies: Answer
- Translation needs (please estimate # hours): Answer
- Transport (please estimate distance): Answer
Appendix 1: Data Confidentiality Agreement
Bwindi Community Hospital Data Confidentiality Agreement
I, the undersigned, agree to the following:
All information shall be treated as strictly confidential and shall not be disclosed or provided to any company, employee, contractor, or other third party who has not signed a Data Confidentiality Agreement. In addition, access to such data shall be allowed only if necessary in the performance of that persons work responsibilities. All other access must be authorized in writing. In addition:
- No attempt shall be made to identify any individual or other personally identifiable information contained in such records.
- No data that identifies specific individuals or other personally identifiable information may be accessed or shared with any other party.
- No aggregate data from such records shall be reported or published without written permission of the executive director or PHA.
- Data may not be copied or stored in any format outside of approved backup procedures.
- Software Developers may not copy data for development and testing purposes without the written permission of the executive director or PHA.
- Access to production, acceptance test, and development data, shall be protected in accordance with the requirements of the data controller.
- Any breach, or suspected breach, of data confidentiality shall be reported immediately to the data controller.
Violation of this agreement may be the basis for legal penalties or data access rights may be withdrawn.
For the purposes of this document, the assigned data controller is:
Osbert Magara/Agwokutho Jimmy
Bwindi Community Hospital
Appendix 2: Data Requisition form
BWINDI COMMUNITY HOSPITAL
Data Requisition form
Phone Number: ______________________________ eMail: ________________________
Job Title: _____________________________________________________________________
Description of the Data, why you need it and for what purpose?
Access End Date: _______________________________________________________________
All expected user groups for the data requested (i.e. will the data be released to third parties?)
Place of data analysis: _________________ Date of data analysis: _______________
BCH USE ONLY
Executive Director/Principal Hospital Administrator
on behalf of Bwindi Community Hospital